Guidelines for NMD

Clinical Care and Standards of Care guidelines for various neuromuscular conditions have been compiled below. This list will be periodically updated to include the latest standards of care.

DMD

DMD International care considerations (External link to TREAT-NMD) — https://treat-nmd.org/resources-support/care-overview/the-diagnosis-management-of-dmd/
Adult DMD Care Guidelines — https://content.iospress.com/articles/journal-of-neuromuscular-diseases/jnd200609
Allied and Nursing Health Guidelines — https://www.tandfonline.com/doi/abs/10.1080/09638288.2021.1936221
Allied and Nursing Health Recommendations — https://doi.org/10.6084/m9.figshare.14838894.v1

SMA

SMA Care Considerations — Part 1 and Part 2

CMT

CMT paediatric guidelines — https://jnnp.bmj.com/content/early/2022/02/27/jnnp-2021-328483
CMTPeds Calculators — https://www.clinicaloutcomemeasures.org/

All neuromuscular conditions

Speech pathology for neuromuscular conditions (PDF Download)

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