The AUSNMD Toolkit is a selection of expanding resources aimed at upskilling clinicians and healthcare professionals who may be unfamiliar with neuromuscular conditions, thereby promoting a common approach to the management of individuals with neuromuscular conditions in Australia.
The tools are grouped by category below. Each tool is either publicly available or confidential (accessible via a request form).
Key:
= Public
= Confidential
It is well-understood that receiving the best care can dramatically improve the quality of life and life expectancy of individuals with Duchenne muscular dystrophy, enabling them to lead fulfilling, independent lives into adulthood. The importance of international care recommendations cannot be underestimated.
Individuals with spinal muscular atrophy (SMA) can vary widely in symptoms and presentation, and therefore it is essential that each individual receives the most appropriate care for their personal situation. Two highly comprehensive articles covering the diagnosis and management of SMA are available in the link below.
Standards of care for Charcot-Marie-Tooth disease (CMT) have recently been published in the Journal of Neurology, Neurosurgery and Psychiatry. Furthermore, several valuable calculators have been created for clinicians to use for the management of individuals with CMT.
Speech, swallowing, oral hygiene, and saliva control can be difficult in individuals with neuromuscular conditions. A team of researchers in the Netherlands have created a comprehensive Best Practice recommendations guideline for speech language therapists and clinicians.